It is with great excitement and gratitude to our UDN-Aus collaborators and stakeholders, to announce we have officially met our recruitment target of 150 families! 

We have now ended recruitment and are transitioning to a focus on data reanalysis and functional studies for enrolled participants from the below sites:

VCGS: Victorian Clinical Genetics Service

AH: Austin Health

MH: Monash Health

SCHN: Sydney Children’s Hospital Network

NHELHD: Hunter Genetics/GoLD Service

GHQ: Genetic Health Queensland

WCHN: Women’s and Children’s Health Network

RDH: Royal Darwin Hospital

TCGS: Tasmanian Clinical Genetics Serivce

Please don’t hesitate to contact our team if you have any questions. You can find the site lead investigators for your state on our Team page.